Faculty MEMBER

Amy Zicarelli

Amy Zicarelli

Eosinophilic Family Coalition (EFC)

Amy Zicarelli is the Director of Operations for Eosinophilic Family Coalition (EFC) and holds a Masters in Marriage & Family Therapy. EFC is a Patient Advocacy organization whose mission is to support and enhance the lives of families living with eosinophilic disorders while advocating for those families and educating those around us.

Amy started her patient advocacy journey just after her son was diagnosed in 2007, 14 years ago. She started a support group in Dallas, TX for families living with EGIDs, with only 5 families from a 200 mile radius. Dallas became the first EFC chapter outside of Cincinnati, Ohio. Today, EFC DFW support group is more than 260 members strong.

Through the years, Amy has spoken at patient conferences sharing her sons EGID journey, she has helped to personally fundraise and donate over 2 million dollars for eosinophilic research, and has helped countless families connect and find support in their own EGID journeys. She serves on the CEGIR Steering committee, Diversity Committee, and EGID Partners.

Amy’s greatest passion is connecting with families from all over the USA via phone, in person, and social media to help families navigate their journey and not feel so lost. She is dedicated to working with the CEGIR consortium, Rare Disease Clinical Network, other Patient Advocacy Groups, FDA, NIH, Pharmaceuticals, and many other groups in the EGID space in order to help push for change for patient families in awareness, access to care, and FDA approved treatments.

AGA Logo